Basically as the title says... We're home! Charlie's operation on 6th Dec was a success and the lesion was removed. He has not been able to establish feeding so needs to be fed through a naso-gastro tube. I am therefore expressing on a regular basis and then giving him the milk through the tube. He is also on 2 drugs for reflux, 1 for seizures, 1 for oral thrush and finished his antibiotics for septis yesterday, all of which need to go down the tube. His reflux is pretty severe, he projectile vomits after every feed and last night I got through 3 sets of pjs. However I am just so pleased to get him home and be able to be a family at last. Abby absolutely adores him and it's so lovely to see them interact together. She squeaks his toy at him and when he smiles she squeals with laughter. That just makes him smile even broader. I could watch them all day. Well I could if I had the time.
Thank you so much for all your supportive messages. It has been a comfort at some of my lower points. It has been quite hard spending 3 months with my children separated and 5 babies I got to know at GOSH have died. I never thought I would see that. Hopefully it will be only be up from now on.