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anyone had baby on nutramigen?

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  • Well after 2 weeks on nutramagen aa my wee boy was back to screaming all the time with vomiting and a runny bum so I put him back on wysoy. He has now been on this since before christmas and is gaining weight and is a happy contented wee boy unlike what he was before. I'm sure nutramagen is great for most babies but not for mine unfortunately. The dietician was not very happy about the change in his milk but she doesn't have to live with him.
  • hi
    haven't been on here in ages - hazel is now 10 months and has been a totally different little girl since starting nutramigen at 6 months old. she had been refusing her bottle for 3 months (was literally phobic even at the sight of it), terribly constipated and dehyrated, and with bleeding infected horrific excema all over her face, shoulders, legs. docs of course treated me like a hysterical mum but i went back about 3x week until finallly a woman doc looked at her milk refusal plus excema as related, and put her on nutrimagen. WHAT A MIRACLE this stuff has been. within a week she was gulping down bottle after bottle (didn't seem to mind the taste) and is still on 24 oz/day. excema almost completely gone and she never scratches anymore. and i can finally take her swimming as her skin is so good! there were many days during the summer when we just coudln't leave the house, everything was excrutiating for her skin.
    we've seen a dietician (had to literally force the (male) doc to refer us, he said 'you already know she's got the intolerance, why see a dietician as well?' DUH to make sure she's getting the right nutrients you idiot! she's a vegetarian like me as well) and the dietician was wonderful. loads of milk-free recipes, weaning info etc that has been invaluable. she said not to re-test the cow's milk until she's at least a year.
    my advice is stand up to your GPs, see lots of different ones until you get the answer you're satisfied with. a saw at least 8 before one took me seriously. they all said cow's milk intolerance was so rare there was no point testing for it. but obviously after reading this forum, it happens!!!
    one thing we noticed with weaning, she has a much stronger gag-reflex than her other baby friends, the dietician puts this down to all the possetting she did while on aptimil - her tummy had got used to the motion of gagging. we've introduced lumpy food very slowly, with lots of encouragement, and she is getting used to it slowly.
    my one concern is that she only does a big soft poo about once a week or less, yet doesn't seem constipated or in pain. the dietician said this could be the nutramigen - as it's so broken down, baby's body doesn't need to do as much work to absorb it and there is much less waste product (ie: poo). any one else had this? she seems happy enough and has an appetite so i'm trying not to worry ;\)
    good luck to everyone. hang in there.
  • When ryan was drinking cows milk he was pooing about 12 times a day +. Now on nutramigen its once a day. still very soft.
    Now at 8 mths he has 8oz with his breakfast, 8oz with his lunch , 8 oz with his tea and 8oz before bed on its own!!! he cant get enough of itimage he sleeps about an hour during the day and 13 hours at night. he is sooooo good. it must be doing something right for us.

    [Modified by: shelleyryder on February 09, 2009 06:41 PM]

  • my lo has just been diagnosed with having a suspected cows milk intolerence because she keeps having bloody stools and being sick, just tried her on the milk and she refuses to touch it has anybody go any tips on how to get her to drink it
  • Hi all, bit of a long chat coming your way but please bare with me!!

    Have been reading your entries and have found them very helpful. My LO is 7weeks old, has had exclusive expressed breastmilk (we had latching problems so had to express) and over the last couple of weeks have tried to introduce him to formula with the view to weaning onto formula as expressing takes in toll in  many ways!! We tried him on aptamil 1 ready made as our 1st son had this with no issues, we started by simply adding 1oz of formula to 3oz breast milk and he vomited back the entire feed a couple of hours later. Thought nothing of it at the time until it happened again a few days later. We then tried him on just 2 oz of the formula alone in case it was reacting with the breast milk but yet again he vomited it back 2 hours later. Spoke to HV who advised trying Cow and Gate, so i tried him this week and yet again he vomited it all back! This time i sat and watched him following the feed as i suspected he would vomit and observed that immediately after taking the formula he screamed in pain (Like colic), bacame pale and clammy and lethargic and spent an hr and half gagging until he brought the entire volume of feed back in 3 vomits over the course of 15mins. Took him to GP as i suspect a cows milk allergy, to be fobbed off with "its reflux, try gaviscon!" There's no way its reflux, this is an allergic reaction, i'm a nurse myself, i know an allergic reaction when i see one!! A friend of mine mentioned nutramigen so typed it in and found you guys! Did any of you see similar symptoms with your little ones when on regular formulas?

  • Hi

    my sons been on nurtamigen for a couple of months now. The problem is that  he seems hungry all the time. He takes 5oz every 3 hours and sometimes 2-3oz inbetween feeds. Ive asked doc if I can thicken it with anything but he said there's nothing that I can use. 

    Ive been told off for 'over-feeding' my son by HV as he's 14 weeks and 16 lbs 15.5oz (he was 6lb 15oz at birth, so note a big baby at birth).

    The thing is, how do they expect me to ignore him when he's screaming in hunger? The HV told me to give him water inbetween feeds, which I tried and it doesn't work and also my sons consultant said not to give babies water under 4 months! I saw the consultant 2 days ago and he said that he has no idea why HV's recommend this ( he's a specialist in dietary requirements for infants) so I'm inclined to trust him more than my HV.

    anyway, at 14 weeks I'm tempted to add rice to his nurtamigen? Ill try anything at this point.....

    any advice?

  • Forgot to add that he's got gaviscon for his milk but this doesn't seem to thicken it enough to satisfy him And he won't take any more oz per feed either

  • Hi all, 

    So my baby boy has been given nutramigen by the DR.

    I have tried feeding him the milk for a few hours now but he just isn't drinking it due to the taste of it but he is very hungry, is there anyway that this can be made to taste slightly better for him?

    I'm weening him so have just been giving him slightly more food to eat as not taking the milk. 

    He was on SMA drunk fine but always sick on it then was given galvascon to help now put him on this but I'm not sure starving from milk(due to him not drinking it) is better.

    Any suggestion?

    Thanks all.

  • My baby boy was the same wouldn't take the milk due to the horrendous taste! He is on aptimal lactose free now and is totaly fine with that x

  • Oh really that is good.

    Can you buy this in the normal supermarkets? 

    Maybe i should try this for him.

    Thanks x

  • I got it from boots from the research I done it seemed to be most like normal formula hope that helps xx

  • Fantastic. Thanks for your help.

    Xx

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