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Hi just thought I'd introduce myself, my name's vicky and i have a 2 1/2 year old who has C.H.A.R.G.E syndrome, is's a 1 in 10,000 condition, he is profoundly deaf, visually impaired, has heart problems and can develope other things as he grows.
Just wondering if there any others with similar problems.


  • Hi Vicky,

    Cant help with the charge syndrome, but my little boy has cardiac problems if I can help?
    We are also waiting for gentic tests to come back to see if he has di george syndrome
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