Hi
Hi just thought I'd introduce myself, my name's vicky and i have a 2 1/2 year old who has C.H.A.R.G.E syndrome, is's a 1 in 10,000 condition, he is profoundly deaf, visually impaired, has heart problems and can develope other things as he grows.
Just wondering if there any others with similar problems.
Just wondering if there any others with similar problems.
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Cant help with the charge syndrome, but my little boy has cardiac problems if I can help?
We are also waiting for gentic tests to come back to see if he has di george syndrome
xxx