Forum home Toddlers & older children Children with special needs

Rare chromosome disorder.

Hi all

I'm new to this site and am pregnant with my 3rd child.
My eldest is called Amber she is 6 years old and suffers from an extremely rare chromosome disorder, so rare that it has no name and as far as we know she is the only child that suffers from it.

It has delayed her development but to the eye Amber looks like any other child!.
It has been hard to get used to having a child that is different but Amber is extremely special to us and makes you realise how presious life really is.

We are members of a brlliant charity called Unique that help with unidentified disorders.

Just wanted to introduce myself and if anyone would like to chat who's going through a similiar thing i'm here.

Sign In or Register to comment.

Featured Discussions