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Left Isomerism

Hi All

I'm not sure if this is the right place to be posting this but our baby hase been diagnosed with Left Isomerism this week and I wondered if anyone knew anyone with this?

I know it is extremly rare but thought I would check!

Replies

  • Hello,
    I don't know anything about this condition I'm afraid-But wanted to wish you luck in finding the information you need!

    xx
  • hi mel im katie i have had a son with this condition and sadly he had it bad if you need to talk i am here if you need me or need some one to talk to xx

     

  • Hi Katie, this is the first time I've been on here in years! My little girl is now 3 and to date has been one of the lucky ones. Very complicated but doing well.



    Sorry to hear about your son.. It's such a horrible condition. Are you a member of the heterotaxy network on fb?
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