Hypotonia and hypermobility
I'd really appreciate some advice/support. My DS is 20 months old and after months of struggling, we finally have a diagnosis of hypotonia and hypermobility. He is still not able to stand alone, crawl or walk. He has been late to reach all his milestones and despite what others say, I have a huge niggle that there is still something else going on that we haven't got to the bottom of. He has just started weekly physio and we have several other referrals we are waiting for (OT, SALT, orthotics, eye clinic and medical paediatrics for suspected heart murmur). It really feels like we're on our own with this and people just don't get how hard it is for DS to do what others take for granted. We have been told many times from friends, family, health visitor and strangers that he is just fat and lazy! Are there any other mums out there going through anything similar that could share their experiences? Would be much appreciated.