No personal experience I'm afraid but my little boy and I have as yet undiagnosed genetic muscle condition and so have some of the same sorts of porblems although it seems ours may non progressive.
Do you have a little boy eith DMD are you getting any support from groups etc? We have a very good chariy group that provides play/physio sessions which was my lifesaver after having my little boy as I got so much support from the other mums.
Hi, Luckily my son doesnt have DMD, he does however have problems with his muscles and joints (amongst other things) so was tested for DMD this time last year, it was a really scary time for us and I can't begin to imagine what it must be like to be told that your child has this.
Hope if it is your little boy that you are getting all the help and support you need xxxx
Replies
Do you have a little boy eith DMD are you getting any support from groups etc? We have a very good chariy group that provides play/physio sessions which was my lifesaver after having my little boy as I got so much support from the other mums.
what area are you in?
Hope if it is your little boy that you are getting all the help and support you need xxxx