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Update - off to GOSH
Charlie has been diagnosed with a condition called hyperinsulinism and has been in the Special Care unit at Wexham Park since Monday afternoon. The cause and prognosis are unknown but he will be transferred to Great Ormond St on Monday. I am going with him and am so upset about leaving my OH and Abby. He will be on the metabolic disorder ward "Rainforest".
This weekend is my special weekend with abby. I'm still quite sore but I'm sure I can manage to take her out to do some fun things. She has been my joy and my rock this week. The other mums in SCBU keep saying that it must be hard having a toddler as well but she provides me with a distraction and a reminder of my beautiful family. I know I always moan about how lively and hard work she is but she has been so good this week. She runs around the corridors of the hosiptal with daddy whilst I am with Charlie and then sits with me readin a book when I express and Daddy is with Charlie. She will then sit with us for 15 minutes whilst we talk to the doctors. She has been amazing! )
I am so upset about the split in my family. My local hospital is 5mins away and I can spilt my time quite well (I discharged myself on Wed) but GOSH is much harder to access. I am going to go days wihtout seeing Abby and my OH and may not be able to come home for weeks. I know this is going to sound awful but I don't want to go. I want to be at home with my daughter and husband. I want to slepp in my bed and wake up with 2 wonderful people to cuddle.
H xx
This weekend is my special weekend with abby. I'm still quite sore but I'm sure I can manage to take her out to do some fun things. She has been my joy and my rock this week. The other mums in SCBU keep saying that it must be hard having a toddler as well but she provides me with a distraction and a reminder of my beautiful family. I know I always moan about how lively and hard work she is but she has been so good this week. She runs around the corridors of the hosiptal with daddy whilst I am with Charlie and then sits with me readin a book when I express and Daddy is with Charlie. She will then sit with us for 15 minutes whilst we talk to the doctors. She has been amazing! )
I am so upset about the split in my family. My local hospital is 5mins away and I can spilt my time quite well (I discharged myself on Wed) but GOSH is much harder to access. I am going to go days wihtout seeing Abby and my OH and may not be able to come home for weeks. I know this is going to sound awful but I don't want to go. I want to be at home with my daughter and husband. I want to slepp in my bed and wake up with 2 wonderful people to cuddle.
H xx
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Replies
not at all what anyone least of all you wanted to hear I REALLY hope that Charlie is okay and fighting on strong just like his mummy
It doesnt sound awful that you don't want to be moved to a hospital miles away from home and the love and support you have from your OH and Daughter that sounds perfectly normal! Yeah it's hard having a toddler but only because your one person and two people need you desparately and you need them and you have to share yourself out! Abby will sense that you need her in her own way and thats probly why she is being so good for you and shes hyper like all biddies are =D
GOSH is an amazing hospital but also somewhere no-one wants to end up cos it means your baby is ill but hun at least he is in the best hands there and although you will be in a strange place alone with Charlie in an unfamiliar and not a very comfy bed at least you know your being an amazing mummy and that your son is getting the best treatment possible! One day you will look back at this hard time and it will all have been worth it! It's heartbreaking that you have to leave Abby and your OH i really think that in these circumstances there should be allowances made and a place for the family to stay too!
All i can say is that you are an amazingly strong lady and a fabulous ,mummy Hopefully on the ward when your settled you will be able to socialise with other mums and babies and make some friends who know what your going thorugh a lot more than we ever could and can offer you some support not the same as your family but at least something and the doctors and nurses are so specialist there too and im sure they will help support you! We are always here for you too all thinking of you, your OH, Abby and baby Charlie at an incredibly difficult time! I hope that you get an explanation and prognosis sharpish once you get there and hopefully your stay wont be too long.....
I think its great your going to have a weekend with Abby i think you need it as much as Abby does something to think of when your with charlie and you can look forward to days out like that with charlie when he's better
Will watch out for your updates as and when you can hun and as Lizzie says your inner strength will get you through your a mummy and were made of tough stuff
Will have you in my thoughts and prayers every day hun and Abby n Charlie too
Much love to you and all the family.....
Eve, Sam, Ella, Ruby & Bump
x.......x........x.......x...........x
Can't imagine how difficult it must be for you being seperated from Abby and your hubby. I'm sure you will cope as well as you can though in the circumstances. I would feel exactly the same about not wanting to go and it doesn't sound awful at all. Totally natural. As Lizzie said they are your two greatest sources of support and love so it's natural that you want to be with them.
My thoughts are with and you and Charlie. I hope that your family are able to be together again as soon as possible. Love and Hugs xx
Thinking of you all. Hope you had a lovely weekend with Abby.
xxx
You must feel so torn, and totally natural to want to be at home with your two rocks.
I hope the move to GOSH goes okay tomorrow and that can get further forward with the casue and prognosis really soon.
And well done Abby for being such a well behaved girl xxx
I hope you had a nice weekend with abby and its not too long before youre back home all together as a family.
Will be thinking of you, oh, abby and charlie.
xxxx
Have you heard of the Ronald McDonald house accomadation at GOSH - May help a little with things?
Mel
Big hugs, and I hope you'll soon be home with both your lovely children again soon.
Hannah xx