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Sturge-weber syndrome or birthmarks
Hi everyone. My son has Sturge-weber syndrome and i would like to speak to other mum with babys that may have the same condition. If your wonderin what it is its when the bloodvessels on the face form the same onto the brain resulting in sturge-weber syndrome. (birthmark) But it can cause alsort of problem...this condtion is rare and only affects 1 in every 400,000.
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i actually went onto another site www.justmommies.com, they don't tend to be as chatty as everyone is on here but for information they're great and as your sons condition is so rare the more places you look the more chance there is of you finding someone with it. good luck and thinking of you
Its awful when they say you ahve to wait and see. They ahve said that to us about my son...noting is ever definate i get so worried sometimes, its the unknown that really upsets me. I feel like iam constantly checking on him to make sure he isnt have a seizer its awful.
I hope your son gets better...iam sure he will. How old is he??
Whatever happens, you and he will be ok, you're his mum and that means you 'just know' how to look after him and you're there when he needs that extra cuddle. good luck with it all