fao : babies with allergies
in Baby
Hi i'm sure some of you remember me saying i thought max was intolerant and he saw dr loads of times etc well they only did a poo sample and said it came back he wasnt intolerant. How accurate is that do you think, how were your babies diagnosed? max is still same with crying, he's improved slightly or i'm just used to it now?? but when he has a feed he comes out in a rash all over his body and after an hour os so of feeding he screams for ages in pain. his poo has been like water from him being born? and he vomits alot sometimes lots sometimes not so much. Well were at hospital on monday to see peadiatrician, how can i convince them to give him a try on the allergy milk?? any tips?? reading your messages bout your babies just makes me think max is same?? thanks sara
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Diagnosis is a nightmare - my lo one had a big reaction to formula rash vomiting runny nose wheezing and I was still told it was a post viral rash - having not had a virus in the first place I knew this was rubbish. The next time it happened i timed it when the GP was open and took her straight in and refused to leave without a prescrioption for a non milk formula the gp I saw was different and was more sympathetic.
However i was still worreid about other reactions and asked if she could be tested but was told no - just introduce other foods slowly!! She had breathing difficulties on 2mls of milk I was not up for trying new stuff at home so I enroled her in a reasearch study for allergic children at St Thomas's hosp in London.
the leap study are exploring why some children grow out of their allergies and others don't. i took her along and they tested for nuts, egg, soya, milk and she had a big reaction to the egg skin test so i was very glad we were already in hospital!
I know using your child in research is not everyone's cup of tea but the chance to talk to an allergy consultant and have a dietician and nurse at the end of the phone with the regular allergy testing has been worth it and she's growing out of both allergies.
www.leapstudy.co.uk - very nice people!
carrie faith
ps how long did it take for the referal to come though they said as she lossing alot weight it wont be long but not sure how long
It's expensive & tins are tiny hence the reluctance of docs to prescribe them but the change in Ellie is immense. She is a different baby & I am so delighted that finally she seems to be on the mend. I remember reading your post about 'the baby that cries,colicky...' something like that anyway & thinking she's talking about my baby!!!! I believe now Ellie was never colicky & that the other problems that went on were all associated with her milk.
I think sooky's idea of feeding the baby in front of your GP is a great one but have you thought about seeing a different doctor for a 2nd opinion? He may not be milk intolerant but could be allergic to some of the proteins in it which is what Ellie is....Good luck hon & let us know how you get on xxx