Jonathan's Locband **UPDATE**
I cant find my original post but you may or may not remember me posting saying that Jonathan has severe plagiocephaly (flat head syndrome) and as a result his ears/eyes etc are out of line, although he is still gorgeous
Well, we have now had the locband for 1 week http://www.londonorthotics.co.uk/plagiocephaly/locband.html and already you can see the difference on his little head. He doesnt even realise he is wearing it and is very happy with it on.
I have added a link to a picture of him wearing it, as when I post pics they never work!!
Anyway, just wanted to let everyone know how well he is doing
http://www.facebook.com/photo.php?pid=1997307&l=02e86&id=601877812
Jen xx
Well, we have now had the locband for 1 week http://www.londonorthotics.co.uk/plagiocephaly/locband.html and already you can see the difference on his little head. He doesnt even realise he is wearing it and is very happy with it on.
I have added a link to a picture of him wearing it, as when I post pics they never work!!
Anyway, just wanted to let everyone know how well he is doing
http://www.facebook.com/photo.php?pid=1997307&l=02e86&id=601877812
Jen xx
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Replies
Have replied once and it vanished so fingers crossed!
Didn't see your previous post but had a conversation with a mate as she is really worried about her little girl so reading this is great!
How long will he need to wear the band for? Is it till things 'right' themselves or for a set period? He's such a cutie-can I see the BE famous Jumperoo in the background?! Got my friend addicted to theJumper when her and her little girl came round today!
It is really lovely to come on here and finally read some lovely, happy news. Well done you and Jonathan!! xx
I also read your original post as we've been concerned with our ds's shape head for similar reasons. The hv's at the clinic advised laying him on other side/sitting him up/using car seat less etc - it seems to of made a big diff, but its not fully "rounded" - they reckon this will come in time!? Something we will address again with clinic!
SO (waffle over) i found it VERY interesting to read up on the locband & thank you for sharing it with us!
Sarah xx
ps - for some reason i couldn't view the piccie
We tried repositioning but it didnt seem to work. There is no set time frame for him to wear the Locband, it could be anywhere betweeen 3 - 6 months bbut hopefully as things are improving already then he wont have to wear it too long.
Not sure why you cant see the pic!
xx
im glad the band is working for him and not bothering him! hope it works quickly so he doesnt have to wear it too long
xx
My OH & i have been discussing Dylan's head shape again & we're wondering if you got referred by your doctor or did you find out about this yourself?
Sarah xx
can I ask how much the locband cost?
I'm really worried about my daughters head, HV & doc take no notice of me at all. When she was born by cs (breech) they cut her head quite badly - still trying to find out what happened as not in notes or anything and she had a hat on when they gave her to me in theatre, she's 15 weeks tomorrow and has a bald spot from the cut (don't thinkl it'll grow back. Anyway because of this (i think) she always sleeps on her right side so her head is flat on one side and her forehead isn't even, I keep trying to reposition her but she just wont have it!
Sure, it cost ??1950, this includes the locband itself plus all cleaning fluids and as many check-ups etc that are needed. It may sound like a lot of money but to be honest, if it fixes the problem then it is a small price to pay.
Jonathan's forehead was not even but it has improved so much already, it was very prominent one side.
There are lots of places that do the locband but they are all called different things. The place I go to is in Kingston. Where abouts are you? They do have 2 clinics and there are other places such as starband and cranio helment etc, here is a link to some
http://www.plagiocephalycare.org/plagiocephaly-helmet-suppliers.php
That is a lot of money but I agree totally worth it when it works, I'm in Blackburn, Lancashire.
The manager of the nursery my eldest goes to has a little boy 3 1/2 and he had plagio, she couldn't get her doctor or hv to take her seriously either, she went private and got her little boy a helmet I think he was around 11 mths when treatment started, following your post I was talking to her about plagio and she told me she wrote to her local nhs trust and got her money back (??3000) she said her sister from sunderland I think got a leaflet about plagio and repositioning at birth, and it should be common practice, also that concerns were raised from early on and advise wasn't given. might be worth thinking about.
Thanks for the link xx
I agree that you should be told about plagio as I didnt know anything about it. Not so sure I would get my money back as they dont even think its anything to worry about here.... they told me oh his hair will grow and you wont notice it!!!! Anyway, back for another check-up on Friday this week so I will keep you updated. I can really tell the difference already, its fab!