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Worried - can't sleep
Morning ladies. Hope everyone is well.
OK - so I have posted about this before but it just wont get out of my head. When I had 12 wk scan they measured the neck fold and took bloods. A week later I received a letter in the post saying that for my age I was 1:990 which is standard for anyone who is 29. Then for my individual result which is the combination of age, measurement and blood markers, it went to 1:1800. Since receiving this info, all I seem to hear is that everyone else has an individual result of a lot lower risk - by this I mean say 1:10,000 etc. I know they say anything below 1:250 is considered high risk and so 1:1800 is far from that, but why do I have this and others have a much greater second number, hence making their risk that much less than mine.
I am now terrified. I am seeing Dr on Wednesday for 16 wk check up so will hopefully get more info then, but in the mean while I am so scared. I know the only way to find out for sure is with CVS or Amnio but there is a risk carried with that. Apparently there is a second trimester test they can do and once combined with the first trimester results, give 96% accuracy, but only 2 hospitals in London offer this for free and it is not mine so if we went down this route we would have to pay. I don't mind this but I think the frustration of it all is not understanding how they come up with the ratios and why 1800 and not 18,000?
Can anyone help?? Anyone else feeling the same?
xx
OK - so I have posted about this before but it just wont get out of my head. When I had 12 wk scan they measured the neck fold and took bloods. A week later I received a letter in the post saying that for my age I was 1:990 which is standard for anyone who is 29. Then for my individual result which is the combination of age, measurement and blood markers, it went to 1:1800. Since receiving this info, all I seem to hear is that everyone else has an individual result of a lot lower risk - by this I mean say 1:10,000 etc. I know they say anything below 1:250 is considered high risk and so 1:1800 is far from that, but why do I have this and others have a much greater second number, hence making their risk that much less than mine.
I am now terrified. I am seeing Dr on Wednesday for 16 wk check up so will hopefully get more info then, but in the mean while I am so scared. I know the only way to find out for sure is with CVS or Amnio but there is a risk carried with that. Apparently there is a second trimester test they can do and once combined with the first trimester results, give 96% accuracy, but only 2 hospitals in London offer this for free and it is not mine so if we went down this route we would have to pay. I don't mind this but I think the frustration of it all is not understanding how they come up with the ratios and why 1800 and not 18,000?
Can anyone help?? Anyone else feeling the same?
xx
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Replies
M x
My MW actually said to me think long and hard before you have the tests as they do cause so much worry. Too much no conclusive knowledge can be so harmful.
I decided that in the end if it was a downs baby we would just cope because when it arrived it would be our baby either way.
I know you are really worried but your stats are fine and even those high risk people with 1:250 still have perfectly healthy babies. Try not to worry, this is such a lovely time of your life, its a shame to spoil it.
Cxx
Hope your doc can help on Weds but try to relax as getting stressed isn't good for you or the baby, maybe have a massage/ a girlie shopping trip etc to try to take your mind off it.
Ames x
22+5
As far as the difference in ratios in concerned, my guess is that it has something to do with you having both blood and nuchal fold tests. I only had blood tests done and came back with a 1:10,000 chance (despite being slightly older than you are). BUT the triple test is slightly less accurate than the nuchal scan. My guess is that having both gives them that much more information to work with, which means more 'soft' risk factors may be evident, hence a lower ratio. By comparison, I could have just as much risk as you, but they simply don't have enough information to alert me to the fact because I have undergone fewer tests. Given that your risk factor fell with additional information, my guess is that you have very little to worry about. But definitely see if you doctor can put your mind at rest. You don't want to be worrying about it throughout the pregnancy!