🚨 Advance warning 🚨 This forum will be closing on 1st May – please see our pinned thread for more information.
Scared, gutted - is it normal ?
Hi girls- Archie has got post urethral valves & other kidney probs. I am gutted. We'll have to follow a special diet & constantly need tests. He could need dialysis & a transplant which is crap & even if he is OK'ish I'll spend all my life worrying about him.
My question is how the hell do I come to terms with this...II know I'm lucky to have him, he's the poorly boy not me etc but inside I'm breaking.... (
My question is how the hell do I come to terms with this...II know I'm lucky to have him, he's the poorly boy not me etc but inside I'm breaking.... (
0
Replies
Even thou I know there was nothing I could have done to prevent any of it, it doesn't stop me worrying how things will be for him thru school life, college (if he goes) & adulthood,
Sorry couldn't really offer much in way of help......but am thinking of u hun & sending cyber hugs for u all xx
The Dr's were fantanstic & although his long term future is unclear they were VERY reassuring that most problems would be fixable (even if he needs a transplant!).
Feel so lucky when we realised we had the 'healthiest' lad there- Others had far more serious problems & were just getting on with it!
So glad to hear your day went ok-what a brave little man!!
I agree with the others though-you accept, but not come to terms with. My daughter had her diagnosis 10 weeks ago today and after the first week or 2 I thought all was ok... until last week and now I feel as unstable as I did at the begining. I'm sure it will change soon-I hope!!
I hope that it is as positive as it sounds in the future-and please keep us posted on Archie's progress!!
Lydia xx
Def no more children for me - it's far too stressful !!!!!
Hope your lo is OK x
I did reach breaking point yesterday- small accident at home involving a chair & a cut lip & I burst into tears & sobbed for over an hour... feel guilty that I wasted so much time pushing him away but enjoying our bonding now even if it has taken a while.