galactosiemia/ cerable palsey

hi ya i have 2 boyswith galactosiemia and wud love to meet any other mums with children with the same metobolic condition and my youngest has ceriable palsey due to been born 10 weeks early cos of preeclampsia so if there r any mums out there in the same boat as me then id love to chat to u some1 who knows what its like to have a child with special needs cos u dont really find any1 about who has the same as u ppl jus usually stare and judge u xxxx