congenital heart defects x

im a newbie here  but ive got a 7 week old son in hospital who has never come home yet as hes very poorly x

he has a condition called hypoplastic left heart syndrome and i was wondering if there is any other mums and dads going through or have been through this before as need advice on it all x hes on the ventorlater as hes no breathing sufficiantly for himself x hes had open heart surgery x an im looking for parnts with there storiees on how they coped and how they are now x