a little girl we know is a tof child, i may have misunderstood the problem fully but its a rare condition that affects the food pipe or airways she was in nicu before an operation and will have to have several more, not sure if all need it but shes tube fed, hope that helps ladies xx
Sorry that's me being dense,I just read the last post I did above.It's supposed to say I thought I was being dense cos I never heard of it.That's what I meant to put.Didn't mean it to be disrespectful and bitchy,apologies Diane,it reads bad.
Just checked out web site Diane,bless you hun,how scary having to deal with that,is the charity a big help to you and your family? Do you get any financial help because of this problem,I think you should as it would be VERY demanding to cope with the condition. Has your son had the op that helps?
Sorry I'm very nosey I'd never heard of it,feel quite ignorant putting that,but true.
I was born in 1962 unable to swallow I hold two USA medical papers in this and run a global hitting website with the backing of top world surgeons I run the biggest FB page and have linked many 100's of Parents together around the world
You can find the site here www.born-unable-to-swallow.com or www.birth-defect.org It hold videos reports etc.
all lead to same website for born unable to swallow.