growing pains

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  hayley_l

  Jun 20, 2009 12:21PM

  Hi hun, I personally would go and ask for a second opinion, My 9 year old had and still has horrible pains which when she was 2 the doctors put down to hypermobile joint syndrome and told me she would grow out of it by the time she was 5, when she was 5 I was told she would grow out of it by the time she was 7 and now she is nearly 10! It took me going to the g.p and having a major hissy fit, telling her I am so damn sick of telling her she has to live with the pain, anyway she got referred to a muscular skeletal specialist who agreed she has benign joing hypermobility syndrome but as a result that she has had no physio or anything till now (she has now been on the waiting list ages and were still waiting) she also has something called lumbar lordosis which basically means that the bottom of her back is bending inwards and something else called bilateral genu varum which means that her femurs are bowed, also one of her knees is twisted inwards and her ankle is pronated which means it again is twisted inwards, they think that physio will sort it but if not she will need surgery when she is older, if they had started the physio earlier instead of telling me it was growing pains she wouldnt be going through all this now.
  
  Sorry if that sounds like a horror story its really not a bad as it sounds but it just annoys me that if instead of fobbing me off and putting me down as a nuerotic mother years ago, if they had done something then it might not have come to this .

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  sparkleXx

  Jun 20, 2009 12:36PM

  hi thanks for replying, your poor little love x
  
  the school have commented on it and said if he has a bad weekend then take him to dr so i might try again x

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  pen-37297

  Jun 20, 2009 2:20PM

  hi. i agree with hayley I. my 3rd son has hypermobility as well, and suffers from excrutiating pain, he has physio and has surgical boots and inserts. i find hot water bottle on the area helps. but at a loss as for anything else apart from calpol and nurofen, which we have to give him at night as he wakes up screaming in pain, due to his muscles tearing from his bones as they grow. it is awful to see and we feel useless as parents and have also been told he will grow out of it by the age of 5 but he is now turning 6. get a second opinion. xx

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