the really heavy bleeding seems to have slowed down now and I'm back to brown/black loss (sorry i know it's tmi) but still hasn't stopped completely and still needing a pad. I'm wondering if I'm a little anemic after bleeding for so long!? I've stopped taking the pregnacare now as didn't see the point bu I'm wondering if the iron wa helping. my lips are so dry.they're cracked and keep bleeding so think I'm a little dehydrated so doing my best to keep my fluid levels up when i can. i know this sounds mad but I'm not nervous abou the scan anymore I'm just looking forward t finally having some closure and not being stuck in this limbo anymore. how are you today hunni? have u had your appointment through yet for your 12 weeks scan? can't WAIT to see your pic, so exciting!! how are all the other lovely dio mummies doing? has everybody had their scan appointments through yet? hope all is well with everybody xxxxx
I havent posted for a while but just wanted to update you and ask for your opinions.
I went and had my first scan, privately last week. I should have been 8 weeks 3 days but my scan only showed bump as 7 weeks. Everythings fine, strong heart beat and baby tucked in tight on my top left side.
I just cant understand how baby can only be 7 weeks. It doesnt fit in with my dates, when I tested positive, the timing of my symptoms or anything
I know in the grand scheme of things its probably not a big issue but I just feel like a shift in dates by 10 days at such an early stage is abit of push back. You kinda count every day as being a day closer to a safer place then to have to go back 10 days
Sorry Ladies, moan over. I hope you are all doing well. Il have a catch up on your posts now xxx
hi twinee, when you have your scan and they date your pregnancy from crl of bean they do tell you it can change upto two weeks either way, ie they can say you're two weeks less or further along than you thought as you're classed as being pregnant from the first day of your last period which means your scan probably is accurate based on when you would have actually concieve if that makes any sense lol it's all very confusing. i do understand what you mean though about feeling robbed of those extra days and weeks as like you said you do literally count each day as a little triumph don't you, especially in the first trimester. I'd say atleast you have more of an accurate dating system now and know it wont change again and best of all your littl bean is healthy and doing well. congrats hunni xxxxx
Im ok today, no i got midwifes sunday - mothers day lol wish i had said yes to the scan now would have been a nice treat but never mind, she will give me a date then
Im glad to read the bleeding has slowed down im wondering if it was just a bleed babe, maybe you knocked your self with out knowing or some thing? you do read that ladies just bleed for no reason and im so hoping thats the case with you, il be keeping every thing crossed for you tomoz huni xxx
cheers hunni. my appointments at tdn fifteen so I'll update when i can and let u know what's happened. glad you're ok hunni. eeeeek can't wai til you get your scan date so we can start the countdown how good is it that your are seeing your mw on mothersday too! ahh how's your sickness now hunni? xxxx
Samantha, I've been thinking about you all day hun, hope you are ok and the appoiniment went well. big hugs t you hun I'm here if you need me xxxxx
hope the scan hasnt been too traumatic and you have some answers finally. just had my first trimester screening results in the post all good low risk 1:24973 though for some reason under parity it has 0.... surely should be 2 as I have had two children surely. the lady asked how old my boys were as she thought they were twins, so not like she didnt see I had two boys already. maybe im being insane, did manage to put the kettle in the fridge today instead of th milk.
Thinking of you huni hope you get some answers today.
Im doing ok, iv not been sick and only feel a bit iffy in the mornings now, some times in the afternoon but nothing much, i had no idea if this is normal with lennon i had no sickness till i hit 10 weeks, i know they say every time is different but half of me wants to have my head down the loo chucking up so i know all is ok.
I asked my other half last night if he felt all was going to be ok this time, he said yes and i was just being over worried, cant wait for sunday to come! i know she is doing a load of blood work sunday but i dont mind it will just be nice to see her, im going to ask about a privet scan before my 12 wk one and hope she offers to do it on sunday lol thought its worth a shot i just tell her i want it for reasurance with every thing iv been through.
I keep dropping hints about mothers day to the other half as he is pants at remembering things lol cant wait for the day lennon is old enough to make me a card i asked him for breaky in bed sunday - even tho it wont be eaten in bed it would be nice if he could make me it lol
hello lovely ladies. ok, where to start. my baby is alive (credit to the fact he is a fighter) but has some serious defects. his or her abdominal wall hasn't closed properly and the intestine and potentially other organs are developing outside of it's body. it also has something called cystoc hygroma which is linked to turners syndrome and edwards syndrome. it's.spine has a huge fluid filled sac attatched to it from it's head to it's bottom and it's neck has cysts with an enlarged nuchal fold. there has been a partial abruption of the placenta which has caused the bleeding and an immediate referral has been made to the specialist fetal medicine unit in liverpool and my first appointment there will be tuesday at ten am where they will perform a more detailed scan so we can get a proper diagnosis and prognosis. there's a potential for down syndrome and heart defects and umpteen other things the docotrs were saying but tbh i just couldn't take it all in. she said the heartbeat looks strong and that the baby is definately a fighter but has some serious problems. I'm kind of numb at the moment and in complete shock. i honestly can't believe this is happening. i wanted to thank you all for being so wonderfully supportive and i will keep you all posted as to our progress. we wont know until Tuesday how many organs are developing outside it's abdomen but best cas scenario it is just the bowel/intestines as this will hold a better chance of.survival. either way the baby will have, if it lives, some serious disablities and there's an extremely painful and long road ahead xxxxx
this is my little fighter. he/she is facing down curled up in a ball but you can see a tiny ear and mouth. th black bit on its lower back is some of the fluid. the sonographer tried to get a nice pic without the stomach and black cloud covering it's spine being too obvious which i thought was nice, sorry it's not a great pic, kindles only have a forward facing camera and its not great i don't want to offend anybody with the pic and hope i haven't i have looked forward to sharing my pic when i got it and still wanted to even though my bub has abnormalities. he/she is measuring 10+5 xxxxx
thanks hun. I've been reaiding up on cystic hygroma and omphalocele and a combination of the two together are not good. it definitely looks like what the hospital said, either turner syndrome or edwards syndrome. coupled with low amniotic fluid and the fact the cystic hygroma covers its entire spine and back of its head aswell as it's neck means the mortality rate is usually 100% i suppose I'm just going to have to accept that i was never meant to meet this little bean. xxxxx
wooooo it's about time they gave you your appointment!!! brilliant. eeeeek exciting (and nervous) times!!! xxx
and you're right hunni. I'm focusing on the positives now, until tuesday i don't actually know what I'm dealing with so I'm enjoying the three beautiful children i have (crying when i need to ) and taking it easy. i will be going by myself tuesday as we've looked at all of the options and it's just not phoesable with for him to come due to school runs etc we have nobody to look after the other three kids so he HAS to stay here, he is devasted and worried about me but I'll honestly be fine as i know the kids are being looked after and wont have to worry about them and getting back in time to pick them up etc. it's going to take two hours to get there and cost £100+ in travelling expenses on public transport so i will be glad when the new car arrives if these appointments are going to get more frequent it'll cost a small fortune lol.
can't wait to see everybody's scan pics, has everybody had theirs now or had appointments through for them? xxxx
to go alone thats going to put extra stress on you, remember we are all there supporting you, i cant even start to think how your other half feels, i know when i went for my scan and was told baby had died in july my partner hated him self for not being able to be there, i should get my 12wk scan date on sunday....feeling worried xx
oooh sarah, i must have been typing as you posted your last message! the symptoms are a bugger for coming and going and half scaring us do death aren't they. i hope you get your scan appointment soon so you get to see your beautiful bean and feel reassured. can't wait to see my lil bub is a true fighter and he is gonna kick ass xxxxx
Replies
the really heavy bleeding seems to have slowed down now and I'm back to brown/black loss (sorry i know it's tmi) but still hasn't stopped completely and still needing a pad. I'm wondering if I'm a little anemic after bleeding for so long!? I've stopped taking the pregnacare now as didn't see the point bu I'm wondering if the iron wa helping. my lips are so dry.they're cracked and keep bleeding so think I'm a little dehydrated so doing my best to keep my fluid levels up when i can. i know this sounds mad but I'm not nervous abou the scan anymore I'm just looking forward t finally having some closure and not being stuck in this limbo anymore. how are you today hunni? have u had your appointment through yet for your 12 weeks scan? can't WAIT to see your pic, so exciting!! how are all the other lovely dio mummies doing? has everybody had their scan appointments through yet? hope all is well with everybody xxxxx
Hi all,
I havent posted for a while but just wanted to update you and ask for your opinions.
I went and had my first scan, privately last week. I should have been 8 weeks 3 days but my scan only showed bump as 7 weeks. Everythings fine, strong heart beat and baby tucked in tight on my top left side.
I just cant understand how baby can only be 7 weeks. It doesnt fit in with my dates, when I tested positive, the timing of my symptoms or anything
I know in the grand scheme of things its probably not a big issue but I just feel like a shift in dates by 10 days at such an early stage is abit of push back. You kinda count every day as being a day closer to a safer place then to have to go back 10 days
Sorry Ladies, moan over. I hope you are all doing well. Il have a catch up on your posts now xxx
hi twinee, when you have your scan and they date your pregnancy from crl of bean they do tell you it can change upto two weeks either way, ie they can say you're two weeks less or further along than you thought as you're classed as being pregnant from the first day of your last period which means your scan probably is accurate based on when you would have actually concieve if that makes any sense lol it's all very confusing. i do understand what you mean though about feeling robbed of those extra days and weeks as like you said you do literally count each day as a little triumph don't you, especially in the first trimester. I'd say atleast you have more of an accurate dating system now and know it wont change again and best of all your littl bean is healthy and doing well. congrats hunni xxxxx
Hi huni
Im ok today, no i got midwifes sunday - mothers day lol wish i had said yes to the scan now would have been a nice treat but never mind, she will give me a date then
Im glad to read the bleeding has slowed down im wondering if it was just a bleed babe, maybe you knocked your self with out knowing or some thing? you do read that ladies just bleed for no reason and im so hoping thats the case with you, il be keeping every thing crossed for you tomoz huni xxx
cheers hunni. my appointments at tdn fifteen so I'll update when i can and let u know what's happened. glad you're ok hunni. eeeeek can't wai til you get your scan date so we can start the countdown
how good is it that your are seeing your mw on mothersday too! ahh 
how's your sickness now hunni? xxxx
Samantha, I've been thinking about you all day hun, hope you are ok and the appoiniment went well. big hugs t you hun I'm here if you need me xxxxx
hope the scan hasnt been too traumatic and you have some answers finally. just had my first trimester screening results in the post all good low risk 1:24973 though for some reason under parity it has 0.... surely should be 2 as I have had two children surely. the lady asked how old my boys were as she thought they were twins, so not like she didnt see I had two boys already. maybe im being insane, did manage to put the kettle in the fridge today instead of th milk.
Hi Chloe
Thinking of you huni hope you get some answers today.
Im doing ok, iv not been sick and only feel a bit iffy in the mornings now, some times in the afternoon but nothing much, i had no idea if this is normal with lennon i had no sickness till i hit 10 weeks, i know they say every time is different but half of me wants to have my head down the loo chucking up so i know all is ok.
I asked my other half last night if he felt all was going to be ok this time, he said yes and i was just being over worried, cant wait for sunday to come! i know she is doing a load of blood work sunday but i dont mind it will just be nice to see her, im going to ask about a privet scan before my 12 wk one and hope she offers to do it on sunday lol thought its worth a shot i just tell her i want it for reasurance with every thing iv been through.
I keep dropping hints about mothers day to the other half as he is pants at remembering things lol cant wait for the day lennon is old enough to make me a card
i asked him for breaky in bed sunday - even tho it wont be eaten in bed it would be nice if he could make me it lol
xxx
hello lovely ladies. ok, where to start. my baby is alive (credit to the fact he is a fighter) but has some serious defects. his or her abdominal wall hasn't closed properly and the intestine and potentially other organs are developing outside of it's body. it also has something called cystoc hygroma which is linked to turners syndrome and edwards syndrome. it's.spine has a huge fluid filled sac attatched to it from it's head to it's bottom and it's neck has cysts with an enlarged nuchal fold. there has been a partial abruption of the placenta which has caused the bleeding and an immediate referral has been made to the specialist fetal medicine unit in liverpool and my first appointment there will be tuesday at ten am where they will perform a more detailed scan so we can get a proper diagnosis and prognosis. there's a potential for down syndrome and heart defects and umpteen other things the docotrs were saying but tbh i just couldn't take it all in. she said the heartbeat looks strong and that the baby is definately a fighter but has some serious problems. I'm kind of numb at the moment and in complete shock. i honestly can't believe this is happening. i wanted to thank you all for being so wonderfully supportive and i will keep you all posted as to our progress. we wont know until Tuesday how many organs are developing outside it's abdomen but best cas scenario it is just the bowel/intestines as this will hold a better chance of.survival. either way the baby will have, if it lives, some serious disablities and there's an extremely painful and long road ahead
xxxxx
this is my little fighter. he/she is facing down curled up in a ball but you can see a tiny ear and mouth. th black bit on its lower back is some of the fluid. the sonographer tried to get a nice pic without the stomach and black cloud covering it's spine being too obvious which i thought was nice, sorry it's not a great pic, kindles only have a forward facing camera and its not great i don't want to offend anybody with the pic and hope i haven't i have looked forward to sharing my pic when i got it and still wanted to even though my bub has abnormalities. he/she is measuring 10+5 xxxxx
my bub xxxx
Such a cute little scan pic huni xx little fighter xx
thanks hun. I've been reaiding up on cystic hygroma and omphalocele and a combination of the two together are not good. it definitely looks like what the hospital said, either turner syndrome or edwards syndrome. coupled with low amniotic fluid and the fact the cystic hygroma covers its entire spine and back of its head aswell as it's neck means the mortality rate is usually 100% i suppose I'm just going to have to accept that i was never meant to meet this little bean. xxxxx
how are all of you lovely ladies doing? it's been very quiet on the dio threads recently, i hope everybody's ok xxxxx
Yeah im fine. Symptoms have eased the last few days.
Got my scan date through yesterday. Its the 9th April, will be 13 weeks by then. Getting nervous about it xxx
Hi chloe
Yes im ok, symptoms have seemed to stopped the last few days so getting a little bit worried.
Babes im sure you will get a chance to meet him/her, he/she has already proven she/he is a strong little fighter
stay positive babes and hold out for tuesday's scan xx
wooooo it's about time they gave you your appointment!!!
brilliant. eeeeek exciting (and nervous) times!!!
xxx
and you're right hunni. I'm focusing on the positives now, until tuesday i don't actually know what I'm dealing with so I'm enjoying the three beautiful children i have (crying when i need to ) and taking it easy. i will be going by myself tuesday as we've looked at all of the options and it's just not phoesable with for him to come due to school runs etc we have nobody to look after the other three kids so he HAS to stay here, he is devasted and worried about me but I'll honestly be fine as i know the kids are being looked after and wont have to worry about them and getting back in time to pick them up etc. it's going to take two hours to get there and cost £100+ in travelling expenses on public transport so i will be glad when the new car arrives if these appointments are going to get more frequent it'll cost a small fortune lol.
can't wait to see everybody's scan pics, has everybody had theirs now or had appointments through for them? xxxx
Oh huni
to go alone thats going to put extra stress on you, remember we are all there supporting you, i cant even start to think how your other half feels, i know when i went for my scan and was told baby had died in july my partner hated him self for not being able to be there, i should get my 12wk scan date on sunday....feeling worried xx
oooh sarah, i must have been typing as you posted your last message! the symptoms are a bugger for coming and going and half scaring us do death aren't they. i hope you get your scan appointment soon so you get to see your beautiful bean and feel reassured. can't wait to see
my lil bub is a true fighter and he is gonna kick ass 
xxxxx